…waiting to see him and tell him how awful I’ve felt over the last couple of months. From a possible IBS issue, to incredibly fatigued, migraines, and sore muscles in my shoulders. I already did blood work to check for lyme, celiac, rheumatoid arthritis, and thyroid. I came back with only one indicator of Lyme (apparently you need 3 indicators detected to have it considered Lyme by CDC – but I’ve been told by others that’s not always the case.). Plus I’ve got Perimenopause symptoms going on.
So who can tell me more about Lyme Disease, Fibromyalgia, and Perimenopause? Any other possible causes I should ask about?
Almost my turn to go in…wish me luck that we can figure it out. I want to get my new videos finished and uploaded to my YouTube Channel – but I need to feel better!
💜 Jacque
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15 comments
Just throwing it out there that is a very widely common syndrome that most medical professionals don’t know about. Dysautonomia. I may not be what you have but it’s always worth exploring. There can be many sypmtoms and comorbidities including everything from fatigue, pain, anxiety, insomnia, dizziness, fainting, etc etc. Worth looking into if not just to rule it out. Wishing you answers and good health!
I’ve suffered with IBS for almost 40 years. I have it mostly under control by increasing fiber in my diet. Some raw vegetables really trigger it! I’m assuming they checked you for anemia?
I’m so sorry that you’re going through this. A good friend of mine has fibromyalgia and her symptoms are very similar to yours. I have a chronic condition which cause abnormal growths to occur in my abdomen and attack various organs, it causes constant severe abdominal pain and frequent bowel obstruction. I went to several doctors before I was diagnose. The most important thing is to find a good doctor that you are comfortable with and ask a lot of questions. I hope you find your answers and some relief soon.
I have Polymayalgia Rheumatica. It seems to come and go. I experienced muscle ache, and I got tired easily. I was put on a med that I cannot think of right now, and it made me feel instantly better, however, I do not like it as it makes you chub up. I did have to stay on it for a while, and then was taken off of it. As I said, it seems to come and go. I was in an auto accident, and that was a trigger for it to return, but it went away again! Have not been bothered by it for a while now, and am very happy! I hope you find out what you have and feel better soon, Jacque.
Praying for total healing! You are so loved! Thank you for being honest… and being totally real! Too many of us walk around pretending all the time! We are here for you!
Hope you find answers
Also symptoms of depression and anxiety.. I have all these symptoms you have.. feel better
Sooo Sorry your going through all of this. Hope you get some answers. Feel better. Keep me posted on how your doing!!!! HUGS 🤗 SANDY
If you have not done so, please have your Vitamind D and Iron levels checked. Vitamin D was my cause. Good luck!
I am 65 and was diagnosis with rheumatoid arthritis when I 23 right after the birth of my child. I really think I had juvenile arthritis which in those days no one went to the doctor unless you were deathly ill!! I was hospitalized with mononucleosis when I was 17, so this could have been the seed for my arthritis. My father also suffered from rheumatoid arthritis in his later years. He was treated with methotrexate shots and prednisone. The methotrexate was new and lead to his death. I took Indocin pills which is a steroid for about 26 years until 16 years ago when I had hip replacements done at age 49. My rheumatologist was able to put me on Remicade around 13 years after trying other medications which did not work for me. I have deformed hands and could never give myself the shots(Embrel, etc). I lost my husband at age 40 after 22 years as a stay at home mother. I started college because I knew I needed a real job that would pay something other than minimum wage and my body was limited in what I could do. I was finishing my last year working on my degree and working a full time job, when I had a huge stress attack with parts of my body swelling up. Apparently I suppressed all my stress regarding the death of my husband(almost being homeless) and dealing with trying to survive when all of sudden my body just gave out. My hands became deformed from this which has really limited me. I choose a career in social work(child welfare 7 mental health) which at times can be stressful. I try to not let the stress get to me and in the last two years I have been able to lose 45lbs which has also helped. I know you understand that it’s very hard to exercise when you can barely get out of bed some days so the weight has creeped up over the years. Food also becomes our comfort for our pain.
Remicade has been the best medication I have ever been given. I would be in a wheelchair without it. I have been able to travel overseas the last couple of years and try to enjoy life while I can. The cost of the medication has been a bummer since I became eligible for Medicare, however I am continuing to work part-time so I can travel and pay for this treatment. My daughter(only child) travels with me as she never knew me when I could sit on the floor, kneel on the floor, reach up high, tie my shoes, put on socks, snap a bra in the back, etc.,so to her I am normal! We recently traveled to New York for my 65th birthday, rode the subways, walked everyway, even climb the broken down escalator which was about three stories high. She just stayed behind me encouraging me to make it to the top. Remember your daughter will be your biggest cheerleader because she will understand compassion from your illness.
I hope you can find something to help you feel better, however our attitude is so much a part of us as well. Don’t give up on trying to find something that will make your life a little more comfortable. I learned that life is too short at age 40.
Miss you on the Q!
Ask about lupus
feel better. Hope dr can figure this out for you…..
Hope you feel better soon.
I have had fibromyalgia for a long time. It takes many Drs and many tests, and usually a couple of years to get the diagnosis. I ache all over, like a flu ache, have chronic migraines, ibs, myofascial pain, fatigue, etc. Fibromyalgia contains a long list of symptoms. There is also ME or CFS you could look into, and Gillain Barre Syndrome.
I have had fibromyalgia for over 25 yrs. Never heard of it until three doctors stated that is what I have.
I am exhausted and muscles ache –but not all the time.
Even now 25 + yrs later I am still learning about it. Something new pops up and I go see the doctor and they state that is a sign of fibromyalgia. I went to a GP and a rheumatologist and a neurologist and then a second rheumatologist. They all came up with fibromyalgia. I was also diagnosed with Chronic fatigue. I have also had a blood clot in my past and now have chronic vein insufficiency.
I will tell you that these two issues really come out in bloom when under stress. Perimenopause is a stress on your body.
I will say that everyone experiences it differently. I have a few friends and they were diagnosed with Fibromyalgia and chronic fatigue and we all experience it differently.
I do yoga and walk and acupuncture. I have had a few stressful years of late so my issues seem to be in full bloom. I hope that you find out what is the issue.